Other Resources

Links marked are to an external site (outside of HNC) and will open in a separate window.

General Information

• Hemophilia Federation of America
  (www.hemophiliafed.org>
• National Hemophilia Foundation
  (www.hemophilia.org)
  • The NHF quarterly magazine HemAware (www.hemaware.org)
• World Federation of Hemophilia
  (www.wfh.org)

Research and Medical Information

• American Association of Blood Banks
  (www.aabb.org)
• American Medical Association
  (www.ama-assn.org)
• American Pain Foundation (APF)
  (painaid.painfoundation.org)
• American Society of Hematology
  (www.hematology.org)
• American Society of Pediatric Hematology/Oncology
  (www.aspho.org)
• Centers for Disease Control & Prevention
  (www.cdc.gov)
• National Heart, Lung, and Blood Institute
  (www.nhlbi.nih.gov)
• National Institute of Allergy and Infectious Diseases
  (www3.niaid.nih.gov)

Other Organizations and Resources

• Bleeding Disorders Legal Hotline
  1-800-520-6154
• Causes-of-Hemophilia
  (hemophilia.morefocus.com/articles/hemophilia/index.php)
• Coalition for Hemophilia B
  (www.coalitionforhemophiliab.org)
• Committee of Ten Thousand
  (www.cott1.org)
• LA Kelley Communications
  (www.kelleycom.com)
• HemaBlog^TM
  (blog.kelleycom.com)
• National Organization for Rare Disorders (NORD)
  (www.rarediseases.org)
• Patient Notification System
  (www.patientnotificationsystem.org)
• Patient Services Incorporated (PSI)
  (www.uneedpsi.org)

Hepatitis and HIV/AIDS Organizations

• Aids info
  (www.aidsinfo.nih.gov)
• American Liver Foundation
  (www.liverfoundation.org)
• American Association for the Study of Liver Diseases
  (www.aasld.org)
• The Foundation for AIDS Research
  (www.amfar.org)
• Hepatitis B Foundation
  (www.hepb.org)
• HIV and Hepatitis.com
  (www.hivandhepatitis.com)
• HIV Positive.com
  (www.hivpositive.com)
• National Hepatitis C Coalition
  (www.nationalhepatitis-c.org)
• NHF and the Hemophilia and AIDS/HIV Network for the Dissemination of Information (HANDI)
  (www.hemophilia.org/resources/handi.htm)

Other Government Organizations

• National Council on Disability
  (www.ncd.gov)
• National Disability Rights Network
  (www.napas.org)
• North Carolina General Assembly
  (www.ncga.state.nc.us)
• Office of Disability Employment Policy
  (www.dol.gov/odep)
• U.S. Food and Drug Administration
  (www.fda.gov)
• U.S. House of Representatives
  (www.house.gov)
• U.S. Senate
  (www.senate.gov)