New HNC Office, Staff and Board Members |
June 12, 2010There certainly has been a lot going on at Hemophilia of North Carolina over the past several weeks! With the increased growth of HNC over the past several years, we have outgrown the office that was in my home and were spilling over into the dining room, garage and many other parts for the house! On June 1st we officially moved into our new office that is located in the Morrisville Chamber of Commerce Building and now have plenty of room for all our files, volunteers and storage. The facility also offers a shared board room, business center and a great meeting room to host our programs and events. It is also a business hub for the town of Morrisville and surrounding areas. The address for the new office is: Hemophilia of North Carolina We will continue to have the post office box address until the end of year and transition over between now and then. We ask that you please update the address in your books, phones, computers or wherever you store this information. Our phone number (both local and toll-free), fax number, email address and web site address will all remain the same (see below for them). With the additional capacity of the office, we are also growing the staff at HNC and the following individuals have come on board to assist with our programs & services: Susan Fletcher, PhD will join us part-time as Programs Coordinator and will be helping with specialized programs in the area of aging and women with bleeding disorders along with grant writing. Sue Fletcher has dysfibrinogenemia (Factor 1: bleeds and clots). Using her personal experiences and professional education, she is dedicated to increasing public awareness about women with bleeding disorders. Sue is working on research projects related to how and when adolescent girls and women with bleeding disorders enter the medical system, psycho-social issues related to women and bleeding disorders, and aging with hemophilia. Her CV is available upon request. Sue can be reached by email at sue.fletcher@hemophilia-nc.org or by phone at the office. Guillermo Sanchez – through the support of an educational grant by Bayer Healthcare, Guillermo will be joining us as part-time Project Director of our Latin Union Program and will work closely with the HTC's and HNC to develop educational programs, increase outreach and provide communications to improve the health and well-being of the Latino population with bleeding disorders in North Carolina. Guillermo was born in San Luis Potosi, Mexico, and has severe hemophilia. He moved to the United States in 2003 with his wife, Abi. He holds a master's degree in psychology and has experience working with domestic violence, mistreatment, and sexual abuse. He has coordinated the Latin Union Program for HNC for the past year, conducting outreach and planning the content of educational sessions. He also has skills in the area of educational brochure development and design. Guillermo's mother founded and is the current director of the hemophilia service organization in San Luis Potosi. He therefore has a thorough understanding of the important role that HNC can play in helping consumers advocate for better treatment and community services. He has a strong desire to assist the Latino population in North Carolina and help HNC accomplish its mission. Guillermo can be reach by email at either guillermo.sanchez@hemophilia-nc.org or union.latina@hemophilia-nc.org or by phone at 704-605-4376. Charlene Cowell will join us as a seasonal summer intern and assist with administrative needs, program development (teen and family programs), fundraising and our expansion into social media. Charlene is currently a junior at UNC Charlotte with a major in psychology. She has volunteered with HNC since 2007 at events, worked on the development and implementation of programs and assists with the mailings that come from the HNC office. Charlene is familiar with many of the individuals and families in the community and looks forward to her summer at HNC. Charlene can be reached by email at charlene.cowell@hemophilia-nc.org or by phone at the office. At our recent Annual Meeting we also elected the Board of Directors for the new fiscal year 2010-2011. We are very pleased to announce that all current board members will be returning and were re-elected for their positions. In addition, we have two new board members joining us – Stephen (Steve) Farrar and Shawna Garrett. The bios and contact information for Steve and Shawna are available on this web site. Our congratulations and warm welcome to Steve and Shawna. We thank everyone for their generous support of time, talent and resources. Without this, our expansion and growth would not be possible and we look forward to another great year for HNC in helping to further our mission to improve the quality of life of persons affected by bleeding disorders through advocacy, education, promotion of research and supportive programs and services. It is our vision for everyone to achieve their full potential without barriers or limitations, until a cure is found! — Susan Cowell |