Bylaws of HNC
Board of Directors, 2011-12
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Steve happily juggles the demands of a research and teaching career, five children, 4 grandchildren, and a medieval Latin scholar wife. He is an associate professor of chemical engineering at NC State University, and has a special interest in biofuels and sustainability. He has no relationship with hemophilia or other bleeding disorder.
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Leonard has a 18-year old son, Dalton Dawes, who has severe factor IX deficiency. In his advocacy efforts he works closely with the National Hemophilia Foundation and the Hemophilia Federation of America. In the 1990s Leonard served on the HNC Board and held the offices of Treasurer and Vice President, and was instrumental in HNC's obtaining nonprofit 501(c)3 status. He is an attorney by profession and is primarily interested in advocacy issues and lobbying efforts.
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Kathy and her husband Charles, who has severe factor VIII deficiency with inhibitor, celebrate their 39th anniversary this year. They have two sons, Nick and Geoff, daughter-in-law Laurie (Nick's wife), and two granddaughters. Kathy has been an officer or board member on and off since the mid 1970s. The recent successes of Hemophilia of North Carolina in the areas of outreach, research, and education are due to the superb leadership of our board and staff. Kathy is honored and pleased to rub elbows with such a talented group. Her brief stint as Interim Executive Director has redoubled her respect for our staff and the complex and varied tasks they handle every day with good humor and great skill.
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Scott is 28 years old and has severe factor IX deficiency.He graduated from NC State University with a bachelors degree in chemistry; he currently works for the business law firm of Womble Carlyle Sandridge and Rice, PLLC. This is Scott's second term serving on the HNC board.
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Tiffany lives in Salisbury with her husband Seth, and 3 year old son, Peyton. Tiffany works at Farrington Family Medicine as a Physician Services Coordinator. After Peyton was diagnosed with severe Hemophilia A, she began volunteering her extra time with the Department of Health and Human Services as a board member for the NC KIDBase program, a program dedicated to helping children with special health care needs in the event of an emergency. She actively helps local hospitals in setting up emergency room protocols for adult and pediatric patients with bleeding disorders. One of her mottos to live by is "Prepare for the worst, and the worst will never happen." She is always willing to take time and talk to or meet with new parents of children with Hemophilia to help them adapt to life as parents of children with special needs.
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Steven Humes, MM, MPH
Hemophilia Treatment Center
University of North Carolina at Chapel Hill
Term: July 1, 2010 - June 30, 2012
<steven.humes@hemophilia-nc.org>
Steven is the Regional Coordinator for the Region IV-North Hemophilia Treatment Center Network composed of ten hemophilia centers in Kentucky, North Carolina, South Carolina, and Tennessee. He is based at the University of North Carolina at Chapel Hill, which holds contracts from the Maternal and Child Health Bureau and the Centers for Disease Control and Prevention supporting the network. He has worked in public health for over twenty years and holds a master's degree in public health from Hunter College (New York, NY) with a concentration in community health education. Prior to assuming his current position in 2005, he was the Director of Research at the National Hemophilia Foundation and the Director of HIV Prevention at Gay Men's Health Crisis, both in New York City. His curriculum vitae is available upon request.
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Warren Ingram, 55, has just completed his first 2-year term on the HNC Board. Warren lives with severe hemophilia A, HIV and hepatitis C. He lives in Pineville, North Carolina with his wife, Sharon, and their two girls, Torinell, 16, and Jasmine, 12. Warren retired from the telecommunication industry in 2002 after spending 18 years with AT&T Communications and another five years with Alltel Communications. Warren recently completed a college degree in Human Services with a concentration in Developmental and Physical Disabilities and completed an internship at Residential and Support Services, a nonprofit dedicated to providing high quality community support services to individuals with developmental and other disabilities and their families in Charlotte. Warren is Executive Director of Patient Advocacy and Care of Advocates Serving and Protecting Foundation. Previously, Warren served on the boards of Hemophilia of Georgia and the Committee of Ten Thousand. Warren also served on the board of the Community Collaborative in Mecklenburg County, which assisted attaining services for children dealing with mental illness, part of a federal Grant for North Carolina, and former board member of the Multi-Cultural Task Force of the National Hemophilia Foundation.
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Maria is an Events Manager at Inmar in Winston-Salem, planning and executing internal and client meetings and events. She currently lives in High Point, NC, with her husband and daughter. Prior to moving to North Carolina, Maria lived in Michigan, where she graduated from Eastern Michigan University and worked in the automotive industry at J.D. Power and Associates. Born into an Argentinean family and having lived in Mexico and Brazil, Maria is fluent in Spanish and Portuguese. She has factor XI deficiency (Hemophilia C) and von Willebrand Disease.
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Amy moved to North Carolina in 1987 after living in Texas and Massachusetts. Amy graduated from NC State University with a degree in business management. Amy is a residential real estate broker with RE/MAX United. She has earned several national designations and won numerous company awards. Amy lives in Durham with her husband and two children. Amy has served on the scholarship committee and ED search committee and is currently in her first term on the HNC board. She has no relationship with hemophilia or other bleeding disorder.
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Ann Skinner is a Research Project Manager with the Center for Child and Family Policy at Duke University. Ann earned a Master's of Education in Special Education from the College of William and Mary. She worked for more than 10 years as a teacher, supervisor and trainer in public schools and residential programs for youth-at-risk in Rhode Island and North Carolina before moving to Duke in 2001. Her more recent work is in the area of child development, with a special focus on the cultural context of parenting behaviors and child adjustment. She has hypofibrinogenemia/Factor I deficiency, and has been focusing her time with HNC on discovering pathways to diagnosis and support for women and girls with bleeding disorders.
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Sally S. Wright, MSW, LCSW
Hemophilia Treatment Center
University of North Carolina at Chapel Hill
Term: July 1, 2010 - June 30, 2012
<sally.wright@hemophilia-nc.org>
Sally has been the social worker at the University of North Carolina's Hemophilia Treatment Center (HTC) since 2005, following eight years within the UNC Healthcare system as a pediatric and NICU social worker. Prior experience has been within the field of developmental disabilities. She has recently assumed the position as the Clinical Program Manager for the HTC. Sally represents Region IV North on the Social Work Working Group for the National Hemophilia Foundation and is on Hemophilia of North Carolina's board. She is a member of the National Association of Social Workers' Academy of Certified Social Workers and is a Licensed Clinical Social Worker in North Carolina. Her BSW and MSW degrees were obtained from West Virginia University. Her curriculum vitae is available upon request.
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Staff
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Kathy is wearing two volunteer hats now. In addition to her normal duties as Treasurer, she has agreed to step in as Executive Director until such time as a permanent ED comes on board.
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Charlene joined us several years ago as a seasonal summer intern and assisted with administrative needs, program development (teen & family programs), fundraising and our expansion into social media. She graduated from UNC Charlotte with a major in psychology. She has volunteered with HNC since 2007 at events, worked on the development and implementation of programs and assists with the mailings that come from the HNC office. Charlene is familiar with many of the individuals and families in the community and looks forward to another summer at HNC.
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Sue helps with specialized programs in the area of aging and women with bleeding disorders, and with grant writing. She has dysfibrinogenemia (Factor 1: bleeds and clots). Using her personal experiences and professional education, she is dedicated to increasing public awareness about women with bleeding disorders. Sue is working on research projects related to how and when adolescent girls and women with bleeding disorders enter the medical system, psycho-social issues related to women and bleeding disorders, and aging with hemophilia. Her curriculum vitae is available upon request.
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Nicole Bailey has recently graduated from North Carolina State University with her Masters of Social Work (MSW). She received her undergraduate degree from Campbell University in 2010. Nicole currently lives in Raleigh, NC. She is originally from Delaware, where the Bailey family has a dairy farm. Nicole does not have a bleeding disorder, but through her internship with Hemophilia of North Carolina, has become very passionate about the community. She is very excited to continue working with women with bleeding disorders and planning the 2012 Hemophilia Walk.
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Guillermo Sánchez is the project director for the Latin Union Program. He was born in San Luis Potosi, Mexico, and has severe hemophilia. He moved to the United States in 2006 with his wife, Abi. He holds a master's degree in psychology and has experience working with domestic violence, mistreatment, and sexual abuse. He has coordinated the Latin Union Program for HNC for the past year, conducting outreach and planning the content of educational sessions. Mr. Sánchez also has skills in the area of educational brochure development and design. Mr. Sánchez's mother founded and is the current director of the hemophilia service organization in San Luis Potosi. He therefore has a thorough understanding of the important role that HNC can play in helping consumers advocate for better treatment and services for the hemophilia community. He has a strong desire to assist the Latino population in North Carolina and help HNC accomplish its mission.
Guillermo Sánchez es el director del Proyecto "Unión Latina". Nació en San Luis Potosí, México y tiene hemofília severa. Llego a los Estado Unidos junto con su esposa Abi en el año 2006. Tiene una Maestría en Psicología y experiencia trabajando en el área de violencia familiar, maltrato y abuso sexual. Guillermo ha estado coordinando desde hace un año el Programa de La Unión Latina para HNC, planeando las sesiones de educación y dando a conocer el grupo. Algunas de sus actividades incluyen el diseño de material de información. La mamá de Guillermo es la fundadora y actual directora de la Asociación Hemofília en la ciudad de San Luis Potosí, lo que le ha ayudado a entender el rol tan importante que HNC desempeña para ayudar a sus integrantes en esfuerzo por conseguir un mejor tratamiento y servicios para la comunidad con hemofília. Guillermo tiene el interés de ayudar a HNC para que extienda sus servicios a los Latinos que viven el Carolina del Norte.
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Main Office
260 Town Hall Dr., Suite A
Morrisville, NC 27560
<info@hemophilia-nc.org>
(800) 990-5557 (toll free)
(919) 319-0014 (direct)
(919) 319-0016 (fax)
Unless mentioned otherwise above, no members of the HNC Board of Directors, staff, or their immediate families have any affiliation with industry related to the care and treatment of persons with bleeding disorders; nor are they a member of, or serving on the board of, any other organization within the bleeding disorders community; nor are other family members presently serving on the HNC Board of Directors.
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