Board of Directors, 2008-09

Richard was employed at the Hemophilia Treatment Center at Wake Forest University for 17 years and has served as Secretary on the HNC Board of Directors for the past two years and co-chair of the Fund Development Committee for the past year. Currently, he is compensated by LA Kelley Communications and has had other newsletters and journals published concerning bleeding disorders for which he was not compensated. He has no known bleeding disorder or any family history.

Leonard has a 14-year old son, Dalton Dawes, who has severe factor IX deficiency. He anticipates joining NHF as he works more closely with them on advocacy issues. Some years ago Leonard served on the HNC Board and held the offices of Treasurer and Vice President. He is an attorney by profession and is primarily interested in advocacy issues and lobbying efforts.

Kathy has been married for 36 years to a person with severe hemophilia A. She is a member of the National Hemophilia Foundation, and has worked with HNC for most of the years since its inception, serving as member, board member and officer. Kathy recently served two terms as president of Community Health Charities of North Carolina (CHC-NC). She will continue as HNC's agency liaison to CHC-NC and maintains a position on the CHC-NC board of directors.

Adam is the communications leader for the Information Protection Services group at IBM in Cary, NC. Previously, he was the Director of Communications for Arsenal Digital from May 2006 until Arsenal was acquired by IBM in December 2007. At Arsenal, he led the marketing and communications efforts to establish Arsenal's mid-market and consumer data protection services. He also was a key architect in Arsenal's re-branding campaign that culminated in the company's acquisition. Adam received his bachelors degree in communications from Illinois State University, and has held a variety of positions in high tech communications during his 18-year career.

Jeannie lives with von Willebrand disease, Type 2 Normandy. She is a Licensed Professional Counselor, and currently works as the staff counselor and supervisor at a local Rape Crisis Center. She has experience with grant writing and other non-profit organizations, and is finishing her PhD in Counselor Education at NC State University. Jeannie is co-chair of the HNC Education Committee.

Scott is 26 years old and has severe factor IX deficiency.  He graduated from NC State University with a bachelors degree in chemistry.  Scott currently works for the business law firm of Womble Carlyle Sandridge and Rice, PLLC.

Steve joined the Hemophilia Diagnostic and Treatment Center at UNC-CH in 2005 as the Regional Coordinator for Region IV North Hemophilia Treatment Center Network. He is the former Director of Research at the National Hemophilia Foundation. Steve received his Master's degree in Public Health from the Community Health Education Program at Hunter College, CUNY.

Warren is 52 years old and is Hemophilia A severe. He resides in Pineville, North Carolina and is married to Sharon, and they have two girls, Emma and Jasmine. Warren retired from the telecommunication industry in 2002 after spending 18 years with AT&T Communications and another five years with Alltel Communications. Warren is currently attending college, majoring in Human Services with a concentration in Developmental and Physical Disabilities. He is currently interning at Residential and Support Services, in Charlotte. Warren is Director of Patient Advocacy and Care for the ASAP Foundation. Previously, Warren served on the boards of Hemophilia of Georgia and the Committee of Ten Thousand. He now is on the board of the Community Collaborative in Mecklenburg County, the governing body for the System of Care Federal Grant for North Carolina, and is an active board member of the Multi Cultural Task Force of National Hemophilia Foundation.

Sally is the social work clinical specialist at the Harold R. Roberts Comprehensive Hemophilia Diagnostic and Treatment Center, University of North Carolina at Chapel Hill. Her curriculum vitae is available upon request.

Staff

Sue lives in Morrisville with her husband of 21 years. They have two daughters in college, one locally and one in Pennsylvania. Sue worked in the New Jersey casino industry for 25 years and left her position as Casino Controller at Caesar's Casino Hotel when she and the family relocated to North Carolina in 2006. Sue has volunteered in the non-profit sector for over 15 years in positions that include the United Way campaign chair for various casinos and president of the local youth sports leagues.

Unless mentioned otherwise above, no members of the HNC Board of Directors, staff, or their immediate families have any affiliation with industry related to the care and treatment of persons with bleeding disorders; nor are they a member of, or serving on the board of, any other organization within the bleeding disorders community; nor are other family members presently serving on the HNC Board of Directors.