Hemophilia of North Carolina

Hemophilia of North Carolina

Since 1977, in service to the people of North Carolina
affected by bleeding disorders

260 Town Hall Dr., Suite A, Morrisville, NC 27560
1-800-990-5557 (toll free)
VON-U

* Register Online

Or download a printable invitation, agenda and registration form* to submit by mail or fax.

* The registration deadline is Friday, March 18, 2011.

Von-U: VWD Educational Weekend

Friday, April 1 – Sunday, April 3, 2011
Graylyn Conference Center
Winston-Salem, NC


You're invited to a special educational weekend specifically designed for those with von Willebrand disease.

The weekend program, hosted by Hemophilia of North Carolina is designed to educate and support those affected with VWD. This program has been developed for:

  1. Adults with VWD – spouses may attend as well
  2. Parents of children with VWD
  3. Affected teen girls (ages 13 and above) – attending with their parents

All expenses are covered – there is no charge for you to attend.

Sessions at this event will increase your knowledge of von Willebrand disease while allowing you to meet others dealing with similar situations in a fun, supportive environment. Please see the tentative agenda below for an overview of the weekend's sessions.

You must pre-register for this event – space is limited – RSVP today!

You may register online or using a printable form (pdf/1mb)* and return by mail or fax. Registration deadline is Friday, March 18.

For more information, please contact HNC Executive Director, Sue Cowell at (800)990-5557 or by email at info@hemophilia-nc.org.

This program is an educational event sponsored by CSL Behring.

VWD Weekend Educational Program
Tentative Agenda

Friday, April 1

3:00–6:00

Check-in (hotel and weekend educational program)

6:00–9:00

Opening Reception with Dinner Buffet

Saturday, April 2

8:00–8:45

Group Breakfast

9:00–9:15

Overview of Weekend Program

9:15–10:00

"What We Know Today About VWD"

10:00–10:30

"The Genetics Game"

10:30–10:45

Break

10:45–12:00

OB/GYN Issues in those with VWD

12:00–1:00

Lunch

1:00–1:30

Current Treatments Options

1:30–2:30

Group Breakouts

2:30–3:30

Group Team Building – Scavenger Hunt

3:30–5:00

Individual questions discussed with our experts in the Hospitality Suite

6:30

"Beach Party" Theme Dinner

Sunday, April 3

8:30–9:45

Group Breakfast with Breakouts

10:00–10:30

Living and Thriving with VWD

10:30–11:15

Effective Communication Skills

11:15–11:45

You Are Not Alone – Resources for those with VWD

11:45–12:15

Closing Session

12:15

Box lunches and departures

(*Adobe Acrobat Reader is required.)


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